18. September 30, 2008

we took paxton to his GI specialist in atlanta yesterday. they're going to schedule another endoscopy & colonoscopy (to be done at the same time so he won't have to be put to sleep twice). :( many of you will remember us telling you how incredibly difficult this test was on paxton last year when he had it done (august 2007). i'm upset that he is having to go through this again, but the doctor did tell us last year that the only way to really monitor changes would be to periodically do these tests. since paxton is still having trouble, he feels it is necessary to take another look. if there are any changes, even subtle changes, he wants to go ahead and start treating Paxton for chrons/colitis. please keep him in your prayers. paxton is a little upset and worried about having to do these tests again, but is being such a trooper about it!! please also continue to pray for his total healing.

the ENT that i saw at emory last week about my ear called today. he told me that he's "not really sure" what to do with my "situation." at first i was a little taken back hearing the chairman of ENT at Emory tell me that he wasn't sure how to handle my "situation." but then it kind of turned to relief. i'd much rather a doctor be honest and say they aren't sure about something than to act like they know what they're doing and experiment on me. it's not only a complicated matter with my ear, but adding all of my neurological "stuff" on top of it causes my case to be a little more difficult.

i had already scheduled an appointment to go to Mayo Clinic in Jacksonville, Florida in November for all of the neurological problems I'm dealing with. I called this afternoon and made them aware of the situation with my ear and they've added ENT to my rotation of visits during my two day stay there. If we're driving all that way, we might as well go ahead and let them see the whole big picture and get their opinion on what's going on!!

still no word from my insurance company regarding the PET scan that my neurologist is wanting to do (to scan for neurosarcoidosis)...I tried calling Friday and no one has returned my call. :/

i'll keep you all posted....thanks so much for your continued prayers!!

i'm blessed indeed!!